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Alliance for Lupus Research

Added: May 15, 2006 | Comments: 14 | Total Plays: 3,506
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Information about lupus from real life lupus survivors. Very moving.

Total Plays: 3,506
Added: May 15, 2006
Comments: 14

Video Details

Description: Information about lupus from real life lupus survivors. Very moving.more >

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  • Feb 22, 2009 6:04 PM
    I am a lu­pus sur­vivor. I wasn't di­ag­nosed till I was 18, my first year of col­lege. I was told I would on­ly live an ad­di­tion­al two years. Here I am, two kids lat­er. Ev­ery part of my body has been af­fect­ed but my kid­neys. My life is an open book: the life of a lu­pus sur­vivor.
  • Dec 31, 2007 6:15 PM
    My 8 year jour­ney with try­ing to get a di­ag­no­sis end­ed this past sum­mer. I was fright­ened re­lieved to find I have SLE. To have a name to many years of un­ex­plained symp­toms and even be­ing told at one time that this was in my head, is a re­lief.
  • Nov 27, 2007 9:30 PM
    I've had Lu­pus for about 15 years and still not di­ag­nosed. I don't take any drugs any­more be­cause the drugs make you worse in the long run. I have been us­ing vi­ta­min and herb sup­pli­ments which are great. Think pos­i­tive, avoid stress, eat right.
  • Oct 26, 2007 2:49 PM
    About To go on my two year an­niver­sary...I was di­ag­nosed on 10/31/2005.....ev­ery­thing is still pret­ty much new to me though and I'm still try­ing to get used to this....any cool ppl with lu­pus send me a mes­sage.....
  • Oct 17, 2007 10:21 PM
    I was just di­ag­nosed with Lu­pus SLE on Sep­t. 20th I am on Pred­nisone and Plaquinil.....I hate this dis­ease
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